Referències (Capítol 11)

Referències de “Que es faci la recerca correcta és cosa de tots”:

1 Oliver S, Clarke-Jones L, Rees R, et al. Involving consumers in research and development agenda setting for the NHS: developing an evidence-based approach. Health Technology Assessment Report 2004;8(15).

2 NIHR Guy’s and St. Thomas’ and King’s College London’s Biomedical Research Centre. Involving users in the research process: a ‘how to’ guide for researchers. Versió 1, abril de 2010. Accés el 17 de gener de 2012.

3 Cartwright J, Crowe S. Patient and public involvement toolkit. London: Wiley-Blackwell and BMJI Books, 2011.

4 European Science Foundation/EMRC. Implementation of medical research in clinical practice – a growing challenge. Strasbourg: ESF, 2011.  Accés el 17 de gener de 2012.

5 Hanley B, Truesdale A, King A, et al. Involving consumers in designing, conducting, and interpreting randomised controlled trials: questionnaire survey. BMJ 2001;322:519-23.

6 Koops L, Lindley RI. Thrombolysis for acute ischaemic stroke: consumer involvement in design of new randomised controlled trial. BMJ 2002;325:415-7.

7 Staley K. Exploring impact: public involvement in NHS, public health and social care research. Eastleigh: INVOLVE, 2009. Disponible a:

8 Petit-Zeman S, Firkins L, Scadding JW. The James Lind Alliance: tackling research mismatches. Lancet 2010;376:667-9.

9 Patient Partner Project. An EU programme ‘Identifying the needs for patients partnering in clinical research’. Accés el 17 de gener de 2012.

10 Thornton H, Edwards A, Elwyn G. Evolving the multiple roles of ‘patients’ in health-care research: reflections after involvement in a trial of shared decision-making. Health Expectations 2003;6:189-97.

11 Dixon-Woods M, Agarwal S, Young B, et al. Integrative approaches to qualitative and quantitative evidence. NHS Health Development Agency, 2004.

12 Kushner R. Breast cancer: a personal history and an investigative report. New York: Harcourt Brace Jovanovitch, 1975.

13 Lerner BH. The breast cancer wars: hope, fear, and the pursuit of a cure in twentieth-century America. New York: Oxford University Press, 2003.

14 Institute of Medical Ethics Working Party on the ethical implications of AIDS: AIDS, ethics, and clinical trials. BMJ 1992;305:699-701.

15 Thornton H. The patient’s role in research. [Paper given at The Lancet ‘Challenge of Breast Cancer’ Conference, Brugge, abril de 1994.] A: Health Committee Third Report. Breast cancer services. Volume II. Minutes of evidence and appendices. London: HMSO, July 1995, 112-4.

16 Concorde Coordinating Committee. Concorde: MRC/ANRS randomised double-blind controlled trial of immediate and deferred zidovudine in symptom-free HIV infection. Lancet 1994;343:871-81.

17 Perehudoff K, Alves TL. Patient and consumer organisations at the European Medicines Agency: financial disclosure and transparency. Amsterdam: Health Action International, 2010.

18 Herxheimer A. Relationships between the pharmaceutical industry and patients’ organisations. BMJ 2003;326:1208-10.

19 Consumers’ Association. Who’s injecting the cash? Which? 2003, abril, pàgs. 24-25.

20 Koops L, Lindley RI. Thrombolysis for acute ischaemic stroke: consumer involvement in design of new randomised controlled trial. BMJ 2002;325:415-7.

21 Donovan J, Mills N, Smith M, et al for the ProtecT Study Group. Quality improvement report: improving design and conduct of randomised trials by embedding them in qualitative research: ProtecT (prostate testing for cancer and treatment) study. BMJ 2002;325:766-70.